Madi is doing a lot of great things. Without internet it has been a challenge to keep everyone updated. Sitting here waiting for her to get out of therapy I realized I have internet access and a few minutes of peace to hopefully give a quick rundown of where we are in her progress.
Madi learned to get to a sitting position on her own on November 5th, and how wonderful it was to witness this new skill. Unfortunately, every new skill brings its own set of new challenges. Madi cannot stay in a sitting position on her own and easily falls over. She can no longer be left on the floor to play because she can fall over and hurt herself. Now we have what I call her crash helmet! A cute pink foam helmet to protect her head if she falls over and I don't catch her quick enough.
Being unable to put her on the floor to play is frustrating for Madi and me. She wants to do the things all other fifteen month olds want to do. She wants to get around and explore table tops, get into containers and cabinets, and follow me around the house. She can't do any of these things on her own, so she expects me or Grandma, or dad to do these things for her. There is no way to make her understand that I can't hold her 24/7 and she tends to throw some tantrums!
We were recently measured for some sure steps. These are a type of brace for her ankle that will help her to walk. I am very excited to see how she does with these. We should have them sometime next month and later this year we will be getting a special walker for her to use.
She is also saying a couple of words. She doesn't use them often, but I am thrilled! I have read that it is common for kids with her condition to not have a form of communication. So any words or hand gestures that she uses keep me hopeful.
Love to you all and thank you for your continued prayers!
